Alopecia is a condition that can make those who experience it feel different or isolated. For Aaron, a 10th grade student, this journey was filled with confusion, bullying, and self-doubt. In this powerful reflection, Aaron opens up about his personal experience, from being diagnosed with alopecia, facing challenges with bullying, and struggling with his self-image to finding strength through his faith, family, and friends. His story is one of resilience and growth, showing how overcoming obstacles can lead to newfound confidence and self-acceptance.
This is more than a story about hair loss; it’s about embracing who you are and learning to shine through difficult times.
1. How did you feel when you were first diagnosed with alopecia?
When I was first diagnosed with alopecia, I felt really confused and out of place. I hardly knew what it was, and learning more about it only upset me further. I went to multiple doctors and hospitals to see if there were any underlying causes, but it turned out I just had alopecia. That made things worse because I was hoping to find a potential cause and get rid of it sooner. Knowing it showed up randomly really hurt me.
2. What challenges did you face with bullying or feeling different?
In 7th grade, I didn’t have many friends and clung to the few people I spoke to because I didn’t have anyone or anywhere else to turn to. A lot of kids would look at my spots, snicker under their breath, giggle, or point. I felt so disgusted with my hair that I fell into a deep depression and didn’t tell anyone what I was going through. I let so many people define who I was, and because I seriously felt ugly, I became an ugly person mentally. I took out my frustration on others and acted out, but I now realize that’s what happens when you’re not in the right headspace.
When I transferred schools for my 8th and final year of middle school, my life changed. I met new people who helped me get through my condition, and I started learning how to adapt to it. I remember one day during gym, I was walking outside with friends, and a girl I thought was my friend grabbed my hat off my head and ran away with it. Some might laugh at the story, but I felt so disrespected and embarrassed. I thought I had escaped negativity, but I realized that no matter where I turned, each road had its own obstacles.
3. How did you cope during that time?
I coped by clinging closely to my religion. I prayed a lot to be “normal” again, and while this habit might sound unhealthy, it gave me something to look forward to—growing my hair naturally again. My friends at the time helped me dig myself out of that hole. My sister and mom were there every step of the way, reminding me I was enough and always beautiful in their eyes. I’ll always appreciate everyone who helped me through that chapter of my life.
I also learned that I wasn’t alone. There are people all over the world, in my country, in my city, and even in my neighborhood, who could be going through the same thing. At first, I hated hearing this because it made me feel like I wasn’t enough on my own, but eventually, I realized having a community of people who understood and supported me was comforting.
4. How has alopecia shaped who you are today?
Alopecia has shaped me in so many ways. Even though I didn’t have it for long, I learned and grew a lot. I was insecure my whole life, and losing my hair in patches—
and eventually being bald for a time—completely broke me. But I had to stay strong and look for the silver lining.
I realized that no matter who you are or what you do, someone will always have something to say about you. If people see something unfamiliar, they’ll talk about it even more. By the time my hair grew back in 8th grade, I had gained so much confidence and self-esteem. People could say whatever they wanted, but I stopped paying attention to negativity. I went through too much during that time to let unnecessary comments affect me.
If I had to do it all over again, I 100% would. Since my diagnosis, I’ve become so much stronger, and I would never give up my growth and happiness for anyone or anything.
5. What’s your advice for someone going through the same thing?
First, I’ll say I got lucky that my hair came back. My dermatologist warned me there was a risk it wouldn’t grow back, but I never lost hope. During dark times, it’s easy to adopt a negative mindset and let it consume you. But staying optimistic and positive is how you shine light into the darkness.
Never forget that you’re not alone. There’s always someone going through the same thing, and your community will help strengthen you. No matter what you’re facing or what anyone says about you, you are always enough. Even if it’s your own parents commenting on you, never let anyone dim your light.
For this reason, I’ve decided to create a safe haven where other students can contact me to share their experiences with bullying—whether related to health disorders or in general.
You can contact me via Instagram: @aaron.i0
In conclusion, Aaron’s experience with alopecia shows how tough times can lead to growth and strength. Despite facing bullying and tough moments, he found support through his family, friends, and faith. His story is a reminder that no matter what challenges come your way, you can get through them and come out stronger. Aaron wants others to know that they are not alone and that they are always enough.
Here are some helpful resources for alopecia support:
National Alopecia Areata Foundation (NAAF) - Offers info, support groups, and community connections. www.naaf.org
Alopecia UK - Provides support, advice, and peer networks. www.alopecia.org.uk
Online Communities - Join Facebook groups or Reddit for support and shared experiences.
Mental Health Support - If needed, seek counseling to manage emotional struggles.
Dermatologists - Consult for medical advice and treatments.
Remember, you're not alone, and these resources can help guide you through the journey.
